Support is
something that you will need a lot of if you are going to
become the care giver for your loved one. I did not receive
any guidance or support from the medical profession and due
to the fact that my wife didn't realize she was sick, there
was no way that she would allow me to bring help to our
home. She did not understand that I was helping her make it
through the day and anytime she found out that I was talking
to anyone about her being sick, she got very upset and
thought I was doing things to harm her and thought I was
trying to divorce her.
I did find
a lot of help at my local church. My friends there prayed for me
daily, the community group that I was a part of helped me
any way they could. My office staff did everything
they could to stop my financial ship from sinking. I am very thankful
for all the help I did receive, especially during the first
year. The most critical help I received was from a ministry
call
Celebrate Recovery.
Attending those meetings were like receiving weekly therapy.
If you are a care giver, make sure you get some mental
conditioning help or you will not make it, simply put, it's to
stressful.
I want to
assist people in finding the help they need. First of all,
with the knowledge and experiences that I have shared. Also
with information on where and how they can receive help from
the community. If you are someone that has decided to take
on the responsibility of being a care giver, you will need a
lot of help. If you are not in a healthy position, you will
not have the patience to help your suffering love one. Get
all the help you can as soon as you can.
I actually
asked many of the people that I consider friends and a lot
of my family to help me financially by metaphorically taking
me to lunch once per month. I hoped that they would be able
to afford to donate $20 per month to help me meet my monthly
financial obligations. I cut my cost as low as I could and
did have a few of them help me. That is the kind of help you
will need if you are not able to work while taking care of
your loved one. There is NO WAY that I can work a full time
job and give my wife the care that she needs to be
comfortable.
I have a
vision to assist people that experience this type of
tragedy. I hope to start an organization that can come along
side a person or family that needs assistance with guidance
of locating resources to help them through their new path of
life and also help sustain them financially for the first 12
months of their adjusting period. I hope to get the
financial support of 10,000 people that will give $20 per
month to help people that call on this organization for
help. I can tell you from experience, it is hard enough
dealing with trying to help your loved one as their care
giver, it is really hard to deal with other things like
getting disability approved, locating and dealing with
community support organizations, and the doctors that you
have to watch frustrate your patient while at the dentist
office. Just a sad, frustrating situation. Hopefully I will
be able to form an organization to help relieve the
pressure, especially during the first 12 months.
NOTICE: I am not a medical
professional, have no medical experience, and do not intend
to give you medical advise. I am simply sharing my
experience with this illness.
