Surviving Wernicke's Encephalopathy 

Home | Nutrition | Support


HomeMy StoryPatient CareNutrition InformationSupportContact
 Wernicke's Encephalopathy Korsakoff's Syndrome
 About Korsakoff's Syndrome...
 


Korsakoff's syndrome is a very rare serious illness that someone can get several ways. My wife ended up with it as a result of getting Wernicke's Encephalopathy. It is a sort term memory condition and causes the patient to have chronic amnesia. This condition is extremely dangerous because the patient is very intellectual but simply does not remember everything they need to remember through the course of the day to safely care for themselves. So, you can meet and speak to someone with Korsakoff's and not even know they have the condition. Their long term memory is usually in tact and they remember everything before the onset of their illness, the problem is that they usually can not maintain new memories thus making them accident prone and in risk of not caring for their own basic needs.

My wife's version of Korsakoff's syndrome is often referred to as Wernicke's - Korsakoff's syndrome or WKS. As mentioned, there are several ways to get Korsakoff's syndrome, the most common being head injuries from some sort of accident. Some Korsakoff's patients can not form any new memories while remember things from the past, long term. If they do have some new memory retention, they often have a hard time sorting those memories out. The patient will often NOT know that they have a debilitating brain dysfunction and do all they can to hide their illness and confusion from others. It is the strangest thing, for a smart person to totally forget what happened just 10 minutes ago, absolutely no memory of what was said or happened. Diane does retain some new memories, some longer than others but she does need daily supervision. I have heard of severe cases where patients only having a 30 second memory, then all is lost, while others may remember things for up to 8 hours, and in mild cases a patient may remember 1/2 of what they experience. Most patients will have a different degree of the illness. In most cases they will try to hide their condition from you in an attempt to make you think they are normal. But what you often see, after spending a few hours or days with them is a very confused person that needs help.

Because of the patients inability to remember simple basic things that happen throughout the day, they are a real safety hazard to themselves. I have heard stories about them starving to death, could not remember if they ate or not. Heard of them developing pneumonia and dying in bed, because they did not realize that they have been in bed for 20 or more days and never left their room. Some have had terrible accidents at home and work. While others have had car accident after accident because their ability to make fast decisions and react to things have been greatly hampered. In most cases the patient has to be supervised and most have to be institutionalized. I was told by our neurologist that Diane would not live another 6 weeks. He simply had not had any patients in her condition survive longer than that. Needless to say, it did not take me long to stop visiting his office.

A very common misconception way for people to relate to this illness is an example of the movie "Ground Hog Day". Bill Murray was reliving a day over and over again. It is really not like that, there is a movie that is a good example and it is called "50 First Dates", a comedy with Adam Sandler and Drew Barrymore. She had the illness because of an accident. Each day that she woke up she had no memory of the day before. It was an example of her retaining all of her previous memory from a certain day, the day before her accident, then not remembering any days after that, thus stuck at that specific time. A scary thing. There were other's in the movie that had Korsakoff's but at different degrees.

All in all this is a type of dementia and should be treated as such. You have to show these patients a lot of love and patients to help them feel comfortable and safe. The most common way to check someone for a form of dementia is to ask them what day and date it is. They usually have no sense of time. However, if they have a two hour memory and seen the date information within that time frame, they can pass the test.

Here are a couple of links:

NOTICE: I am not a medical professional, have no medical experience, and do not intend to give you medical advise. I am simply sharing my experience with this illness.


Home | My Story | Patient Care | Nutrition Info | Support | Contact Us